Keynote at the XVII Congreso SESPAS sobre Ciencia para la Acción:
Research generates more data than ever before. These data lead to new findings, disprove hypotheses, and are fundamental to understanding research results. However, often published findings are available to researchers while data supporting those findings are not accessible. Data sharing or publishing, is a relatively recent term defined as "the release of research data, associated metadata, accompanying documentation, and software code (in cases where the raw data have been processed or manipulated) for re-use and analysis in such a manner that they can be discovered on the Web and referred to in a unique and persistent way." Sharing avoids duplication of expensive experiments, speeds up health and medical scientific discoveries, and is needed to reproduce and verify published findings. So why are not all researchers sharing their data? Several factors contribute: incentives for sharing are not clear, technologies for sharing are not readily available, and privacy concerns make sharing difficult.